Two miles into a nine-mile hike—a hike my husband and I have done before, the breadth and terrain similar to hikes we plan and execute every West Texas summer vacation—I knew one thing for certain: my left leg was trying to kill me.
Sondra, you captured the Disney-like animal encounters so beautifully. And the shame and blame around past indulgences resonates…the more I read about RA and smoking (as if that’s the WORST, I did), the more I have to pull myself out of berating mode. All my love to you on this journey. And whenever you need a little break from it all, there is a casita with your name on it!
Oh Sondra! My heart goes out to you. We tend to feel better when we have a name for our adversaries. I send you only healing thoughts and energy! May you find your way through this diagnosis with the help of those you love beside you.
You may not remember, but my husband has something called REM Sleep behavior disorder, which is a probable per-cursor to Parkinson's and has been participating in a worldwide study called PPMI. Here is a great resource for you to consider. https://www.michaeljfox.org/key-research-initiatives.
Thank you, Vicki. I don't recall that but I have been to this website several times. Will be a great resource. Interestingly enough, sleep disturbances/acting out dreams is the only symptom I don't have (for now anyway). I appreciate you. xo
I was diagnosed with Parkinson’s in 2018. It can be helpful to chat with others who understand. You’re welcome to DM me anytime. I loved your description of feeling like you crashed your dopamine supply after years of going full throttle…can totally relate.
Hi Eileen. This is so fresh that I don't really have those people yet however, I do know the power of community with those who share your malady. Thank you. I'll take you up on that. xo
Hugs from here too, Sondra! Kudos for your bone density as well as your many other strengths. You are so talented in so many directions, you’ll continue to walk creative paths. And keep in mind you can’t drive forward looking in the rear view mirror.
Sondra, this share about your diagnosis is generous and beautiful. My uncle had it, Parkinson’s. He seemed eased by courage and community. Nature too. I love how the animals see you and are holding you. And your beloveds. And community, too.
This was such a beautiful post - thank you for sharing your journey with us. I am glad you have a diagnosis and a good neurologist. As a cancer surivivor, I know both the anxiety of not knowing and of blaming past behavior. Sending you lots of love.
You and family. Love & appreciate you so much over these past 4 1/2 years. You have been a source of strength and softness and safety for me. XoBarbara
Sondra, sending you all my love. Thank you for your vulnerability and, once again, showing me how it's done. I'm so grateful our lives intersected when they did. Love you, lady. I'm here if you need a friend. xoxo
Oh, Sandra! Thank you for sharing your particular experience, strength, and hope in the beautiful, luminous way you have with words. Isn't aging weird? Having just turned 60 this year I am catching up with myself about entering a whole new decade that feels really different from the ones that came before. What will this decade bring in its own sweet time? We will see. All of this to say, I see you and I hear you. Again - thank you for sharing yourself with all of us. Sending you a deep bow of heartfelt appreciation, care, and respect.
Wrapping you up in a healing cocoon, Sondra. I listened to this recently, some interesting nuggets on the microbiome and Parkinson’s. Lots of love 💙
https://youtu.be/J6gfH9Q4NWY?si=RKwE0M2mvV8hyhFv
I'll definitely check that out. Thanks so much. xo
Sondra, you captured the Disney-like animal encounters so beautifully. And the shame and blame around past indulgences resonates…the more I read about RA and smoking (as if that’s the WORST, I did), the more I have to pull myself out of berating mode. All my love to you on this journey. And whenever you need a little break from it all, there is a casita with your name on it!
Oh, Christy. I didn't know that. I'm so sorry. I 100% get it. And thank you! I will take you up on that. Promise. xoxo
Oh Sondra! My heart goes out to you. We tend to feel better when we have a name for our adversaries. I send you only healing thoughts and energy! May you find your way through this diagnosis with the help of those you love beside you.
You may not remember, but my husband has something called REM Sleep behavior disorder, which is a probable per-cursor to Parkinson's and has been participating in a worldwide study called PPMI. Here is a great resource for you to consider. https://www.michaeljfox.org/key-research-initiatives.
Sending hugs and prayers!
Vicki Rethemeyer
Thank you, Vicki. I don't recall that but I have been to this website several times. Will be a great resource. Interestingly enough, sleep disturbances/acting out dreams is the only symptom I don't have (for now anyway). I appreciate you. xo
Sending peace, joy, and love to you, Sandra, as you navigate your newest terrain. What a challenge before you!
Indeed. Thank you so much. xo
Thinking of you and sending you love, Sondra 🙏
Thanks so much, Tami. Miss you. xoxo
I was diagnosed with Parkinson’s in 2018. It can be helpful to chat with others who understand. You’re welcome to DM me anytime. I loved your description of feeling like you crashed your dopamine supply after years of going full throttle…can totally relate.
Hi Eileen. This is so fresh that I don't really have those people yet however, I do know the power of community with those who share your malady. Thank you. I'll take you up on that. xo
I love this podcast. Smart folks. https://open.spotify.com/episode/6fKJ7yrp6SxEZlEXGnu8Ik?si=FgXaLUZTR32dPgNGf6iIVg
Thank you!
Hugs from here too, Sondra! Kudos for your bone density as well as your many other strengths. You are so talented in so many directions, you’ll continue to walk creative paths. And keep in mind you can’t drive forward looking in the rear view mirror.
I know you're right about that, Lynne. Thanks for the reminder. xo
You have such a way of making a silk purse out of a sow's ear (probably literally). What beautiful words! Sending you lots of love.
I've never heard that phrase but that is my superpower. I'll take it! Thank you. xx
Sondra, this share about your diagnosis is generous and beautiful. My uncle had it, Parkinson’s. He seemed eased by courage and community. Nature too. I love how the animals see you and are holding you. And your beloveds. And community, too.
Much love from Petaluma. xox
Hi Amy. I'm seeing the benefits to everything you mentioned. Thank you. Xo
This was such a beautiful post - thank you for sharing your journey with us. I am glad you have a diagnosis and a good neurologist. As a cancer surivivor, I know both the anxiety of not knowing and of blaming past behavior. Sending you lots of love.
Yes, I'm sure you do. I'm going to borrow some of your strength. Thank you. Xo
Hi Sondra, Thank you for sharing. I wish you the best and I belive that you are a very strong woman.
Love from Paris
Xoxo
Silvia, thank you so much. xox
❤️(((Sondra)))❤️
xoxo
You and family. Love & appreciate you so much over these past 4 1/2 years. You have been a source of strength and softness and safety for me. XoBarbara
Thank you, Barbara. xoxo
Sondra♥️💔 I so apprecidadrte your generous vulnerable share. I wish it wasn’t so. Sending love & strength to
Sondra, sending you all my love. Thank you for your vulnerability and, once again, showing me how it's done. I'm so grateful our lives intersected when they did. Love you, lady. I'm here if you need a friend. xoxo
Thank you, love you, miss you. xoxo
Oh, Sandra! Thank you for sharing your particular experience, strength, and hope in the beautiful, luminous way you have with words. Isn't aging weird? Having just turned 60 this year I am catching up with myself about entering a whole new decade that feels really different from the ones that came before. What will this decade bring in its own sweet time? We will see. All of this to say, I see you and I hear you. Again - thank you for sharing yourself with all of us. Sending you a deep bow of heartfelt appreciation, care, and respect.
Thank you for your kind words, Elizabeth. It is weird indeed. I appreciate you. xoxo